This comprehensive 26 page Guide outlines best practice for the publication and sharing of sensitive research data in the Australian context. For a short overview see ANDS Introduction to Sensitive Data.
Key messages
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The Guide follows the sequence, detail and context to the steps necessary for publishing and sharing sensitive data. These steps are summarised in the Decision Tree poster (PDF, 0.17 MB)
The Guide covers
- Defining sensitive data: Data about people and endangered species
- How to publish and share sensitive data
- De-identifying data
- Ethical considerations: What to include in a consent form requesting data publication and sharing
- Data citation
- Conditional access to data: What is it and how do I do it?
- An example of published metadata with conditional access to data: The Australian Longitudinal Study of Women's Health (ALSWH)
- Licensing
- How do I know if I own the copyright for the data?
- Where should I publish my data?
- Relevant National Guidelines
- Related international guides
- References